V's Version

The health saga takes yet another turn. If you tuned in a couple of weeks ago, you saw that I made the decision to get IVIG treatments at the hospital in hopes of relieving the discomfort of mouth lesions.

If you tuned in last week, you would have noticed that I had some kind of allergic reaction to the IVIG and had a wicked super strong splitting headache and nausea to boot. This was taken care of at the hospital with anti nausea meds and morphine.

If you tuned in this week - you would have heard that I completed the full round of IVIG - using benedryl to counteract whatever was making me have a headache. (Now that I think of it - it might have been the $15,000 a day pricetag for the drug that gave me a headache!)

And now you are here. I am covered shoulders to ankles in red spots and welts. I am unbelievably itchy and uncomfortable. It must be an allergic reaction to the medication. Either that or it was the Chinese food that we ate with Dani's German friends. Any way we look at it - I am miserable.

I tried to take a long-anticipated quilting class with Meri Vahl and made it maybe 2/3 of the way through the class and then had to go.

Nothing is touching this - cortizone, oatmeal, benedryl, Aveeno lotion, arnica...nothing.

I realize that I have a reputation of looking on the bright side. I am not - at this moment - sure of where the bright side is. I am a jumping bundle of nerves trying hard not to scratch my skin off.

Labels: allergic reaction, cancer lymphoma PNP Paraneoplastic Pemphigus PV immune hope optomistic support system women mother with IVIG IGG intervenous gammaglobulin, rash